I noticed that . Typically after the first post hits the front page and goes viral, someone else will submit a second post, which also hits the front page. It's rare, but I have seen it happen a few times over the years.
mosferatu [3 hidden]5 mins ago
Who is he?
rsyring [3 hidden]5 mins ago
Actions reflect someone's priorities.
I don't want my son, who has narcolepsy, to be tired all the time.
But the medicine that helps him, Xyrem (GHB), is $20K a month.
Pay it, don't pay it, neither option truly reflects my priorities. It only reflects the hand I've been dealt by other people's priorities.
spiralcoaster [3 hidden]5 mins ago
I think your action of coming here to completely misinterpret the post and then turn it into a sob story definitely reflects your priorities!
edwardbernays [3 hidden]5 mins ago
TWENTY thousand a month? Surely this is wrong. Even $2k is ridiculous, but that's just criminal. Honestly, at a certain point, you might consider learning organic chemistry just to synthesize it yourself. It's fairly easy using unwatched precursors.
I don't know the parent story at all, but generally drug companies are allowed to charge $$$$ for certain drugs that are affective for rare conditions, on the basis that it won't be patients who pay for them. Rather payment will ultimately come from government, possibly via an insurer. The idea being that the drugs get made and brought to market when otherwise they would not, because nobody can afford a $20K drug.
sudofail [3 hidden]5 mins ago
Really sorry there isn’t more support for you and your son. American drug prices are insane. In Australia it’s about 600/month
paulpauper [3 hidden]5 mins ago
I think he put it through GPT?
In this week’s newsletter, I want to give you some personal insight from my own experiences that I think will help explain where true personal satisfaction comes from—it comes from many places, not just one—and how you create it every day, win or lose, by the way you show up in each part of your life.
HN.zip
I don't want my son, who has narcolepsy, to be tired all the time.
But the medicine that helps him, Xyrem (GHB), is $20K a month.
Pay it, don't pay it, neither option truly reflects my priorities. It only reflects the hand I've been dealt by other people's priorities.
> Retail price of $21,239.97
The site is misleading in that they indicate you can just buy it from any pharmacy. But that's not how it works.
More details at: https://en.wikipedia.org/wiki/Sodium_oxybate#Cost
In this week’s newsletter, I want to give you some personal insight from my own experiences that I think will help explain where true personal satisfaction comes from—it comes from many places, not just one—and how you create it every day, win or lose, by the way you show up in each part of your life.
Note the em dashes.